A number of mothers, each with a severely epileptic child, are today holding a vigil outside the offices of the Department of Health & Social Care, the London headquarters of NHSE, the Scottish Parliament, and the Welsh Assembly.
The mothers are protesting as medical cannabis is the only medication that works for managing their children’s symptoms but they have been denied NHS prescriptions despite medical cannabis being legalised in November 2018.
No help for families
Private prescriptions, which can cost thousands of pounds, are the only option available to the families, which are unable to obtain medical cannabis through the NHS. The UK Government has told them that it will not offer financial support, despite the devolved administration in Northern Ireland recently stepping in to supporting a family there.
A spokesman for the End Our Pain Campaign said: “Everyone involved from the Government and NHS side says they want to help, but the months drag on and these families have not had any help. Some of the doctors in the leading medical professional bodies constantly say that they want more evidence that medical cannabis works and is safe. What they fail to acknowledge is that these families have got the best evidence of all that it works for their child.
“They have been securing and administering it for months now with dramatic improvements in their children’s wellbeing. Some of the children have gone from being exceptionally ill to going a year seizure free. Given what appears to have happened in Northern Ireland we are pleading with Matt Hancock and the health ministers Jeane Freeman MSP in Scotland and Vaughan Gething MS in Wales to find a way to make this work in their jurisdictions.”