Each morning, Kim Hearn attaches a feeding tube to her son before outfitting him in specialized clothes that lend support to his torso, ankles and legs.
A seizure often disrupts the process. It's a rigorous routine for this Stratford mom but it's nothing, she says, compared to what the 10-year-old, who can't speak or sit on his own, endures: "Sean just accepts it."
As a baby, Sean was diagnosed with Lennox-Gastaut Syndrome, a form of epilepsy. A dozen medications have failed to reduce the 30-plus seizures Sean experiences every day.
Each episode is damaging to the boy, already frail. Hearn believes there could be an answer: an oil made from marijuana plants called Charlotte's Web.
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Sarah Cody ~ Hartford Courant ~
